| Do you know the story about
how the Tri-State Multiple Sclerosis Association came to be?
There are a good number of families in the tri-state area who have
had a family member living with Multiple Sclerosis for many years.
They were diagnosed in the years before MRI technology allowed doctors
to see lesions on the brain or spine, years before any MS-specific
medications were available, years when therapy was not recommended
for people with MS.
In fact, many of those who were diagnosed with MS, were basically
told there was nothing to be done except prepare for the disease
to put you in a wheelchair or worse.
Patients had few resources for information for these were days before
the internet, few books existed and the few that did were mostly
clinical in nature. It was difficult to find anyone else living
with the disease because support groups were few and far between.
The national resources that existed were not based in the tri-state
area so they seemed distant.
Then, a group of volunteers, some living with MS and some interested
in helping tri-state residents affected by Multiple Sclerosis, decided
there was a need for local services and support for families affected
by this disease. A dream was born and this group was determined
to make it a reality. Over time, the group was able to get a 501
© 3 license to form a not-for-profit, donations were accepted,
and from the home of one of the members, a phone line was open to
anyone in need. The volunteers began to offer services in response
to the calls received. Eventually, the group formed a board of directors
and Debbie Hebbeler accepted the position of Executive Director.
Her home was her original office and she’s made a few other
moves over the years as services grew and needs changed. The board
has continued to direct the association’s purpose and mission
with strategic plans for long-term growth set forth in the late
part of 2005. Our association now employs a part-time social worker
and a part-time office assistant. There are six active support groups,
a monthly newsletter, an annual family weekend at Camp Carson, an
adult weekend away in Evansville, two annual autumn walks, and numerous
educational programs, all of which help over 1,100 families in the
tri-state area.
The association thrives because of the support we receive from
those 1,100 families and from generous corporate and local business
sponsors. We are grateful to the foundations which offer support
through grants and other funding programs.
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